A BURGESS Hill mother has spoken of the care her severely disabled daughter receives from a Sussex hospice that needs public support to continue its work.
Teenager Amy Ellis-Somerville was damaged at birth and has very complex needs. She is blind, unable to walk or talk and has severe epilepsy.
Amy, 14, has respite care at the only children's hospice in Sussex, Chestnut Tree House near Arundel, and loves her stays.
For her parents, Debbie and Mark, a visit to Chestnut Tree House gives them a break from the 24-hour care Amy needs and enables them to spend time with James, Amy's 11-year-old brother.
Debbie said: "I heard about Chestnut Tree House through a friend. Amy just loves being among the other children there and enjoys the one-to-one care."
It costs the hospice about £2million per year to provide care services for children like Amy with life-limiting illnesses. Families are not charged for their care and the hospice receives hardly any government funding at all, so it relies on the generosity and support of the people of Sussex.
Read the full story in the Mid Sussex Times
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