Charity calls for better ME services for children
Janice Kent
‘reMEmber’, the Mid Sussex based charity for people with ME, is targeting the NHS and Government departments as part of its campaign for better services for people who suffer from this chronic illness.
Janice Kent, Director of reMEmber, which has its head office in Hurstpierpoint, says: “NHS services for ME patients vary from place to place. Some do not have a doctor, and in some parts of the country there is no service at all.
“Locally, we are pressing the authorities to provide help for children in Mid Sussex who suffer from this painful and debilitating illness.
“The only place in Sussex which has such a service currently is Brighton, and children from outside Brighton cannot use it.
“Their parents are being told they could try seeking private treatment for their children, or take them to London. That is clearly unacceptable.”
Do you have a child with ME? If so, do you think there should be an NHS community service for children in Mid Sussex?
We would like to know your views and hear your experiences. Please telephone Dianne Jones at the Middy on 01444 419577 or email: dianne.jones@jpress.co.uk
The reMEmber charity holds self-management courses for people with CFS/ME to help them understand the illness and how to deal with its effects.
The next course will be held at Haywards Heath Town Hall, starting on Friday, February 15 at 10.30am. For more information about this course or the work of reMEmber contact Janice Kent on 01273 831733, e-mail me_cfs @
hotmail.com, or visit {www.remembercfs.org.uk
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Weather for Haywards Heath
Wednesday 19 June 2013
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