Event to support those with motor neurone disease

The West Sussex North Branch of the Motor Neurone Disease Association is to hold a Fashion Show in October to raise funds to support local people living with the progressive neurological disease and to promote awareness of its debilitating effects on individuals and their families.

Thursday, 14th July 2016, 4:57 pm
Updated Thursday, 14th July 2016, 6:00 pm
Chris Sheridan, vice-chair, MND Association, West Sussex branch and Andy Spriggs.

The clothes for the show are being supplied by Jo Dennis of Jo Jo Boutique in Cuckfield. However, in the run-up to the event, the branch committee is seeking support from other local businesses to help maximise the funds raised.

Branch vice-chair, Chris Sheridan, said: “We think this is a great opportunity for local companies to associate themselves with a charity which has come very much to the fore in the past two years after the Ice Bucket Challenge and the Oscar-winning film The Theory of Everything about the impact of motor neurone disease (MND) on the life of Professor Stephen Hawking.

“In particular, we are looking for companies who might help us with drinks, raffle prizes, background music and stylist/beauticians for the five models.”

“It’s crucial that people have a better understanding of the reality of what an MND diagnosis means,” says Andy Spriggs, a Horsham resident who lives with the incurable disease.

“It affects the brain and spinal cord, attacking the nerves that control movement as well as speech, swallowing and breathing.

“Stephen Hawking’s story is very inspiring but the harsh truth is that more than half of people with MND die less than two years after they’re diagnosed and, younger people, often with young families can also be affected.

“I am extremely grateful for the fantastic work that our local branch does for those living with the disease and their families.”

The event is being held at the Queens Hall Cuckfield on the evening of Thursday, October 20.

Tickets, priced at £10 including a welcome drink and canapés, can be obtained by emailing [email protected] or from Jo at the Jo Jo Boutique.